Celiac Connect Online Meeting

The Celiac Disease Center at Columbia University is presenting a livestream on April 1, 10 am – 12pm.

Note: they are also hosting a different meeting on April 8-9, 2022.

Register here

From their website:

The purpose of this series is to increase the knowledge base of participants in the pathophysiology, clinical presentation, diagnosis and management of celiac disease to make them aware of the potential increase of morbidity and mortality and to educate about the nature of a gluten-free diet. 

The target audience is adult and pediatric physicians and physician’s assistants, nurse practitioners, fellows, dietitians and nutritionists, researchers and patients.

This is the first in a series of 10 bimonthly programs. Other topics include:

Clinical features and diagnosis of celiac disease in both children and adults.

Management of celiac disease after diagnosis: How healthy is a gluten-free diet?

Pathogenesis of celiac disease and the role of the microbiome.

Extraintestinal manifestations of celiac disease as risk factors for the diagnosis and their assessment after diagnosis. Evaluation of comorbid conditions. 

Management of the poorly responsive patient. Can the diet be stricter? Is this refractory celiac disease?

If it is not celiac disease, what could it be? How common is seronegative celiac disease and non-celiac villous atrophy?

Non-celiac gluten sensitivity. How do we diagnose and manage this condition?

Two important issues: malignancy and osteoporosis in celiac disease.

Quality of life in celiac disease.  What are the factors contributing to QOL and how can we do a better job?

Agenda:

10:00 AM – 10:30 AM Changing Epidemiology of Celiac Disease Over Space and Time

10:30 AM – 11:00 AM Gluten Timing and Quantity as a Risk Factor for Celiac Disease

11:00 AM – 11:30 AM Environmental Risk Factors for Celiac Disease Apart from Gluten

11:30 AM – 12:00 PM Case Presentation/Q&A

Register here

Celiac Disease and COVID-19 Webinar

National Celiac Association (NCA) and the Harvard Medical School Celiac Research Program are presenting a webinar on Wednesday, March 23, 2002 at 1pm ET.

Register Here

From their website:

Topic: From the Experts: Join Our Virtual Monthly Meeting on “All Things Celiac”

Description: “Living with COVID-19: Celiac Disease, Autoimmunity & Hyperinflammation”

Join the National Celiac Association (NCA) and the Harvard Medical School Celiac Research Program for the second webinar in our Spring 2022 “All Things Celiac” series. Speakers will present on selected topics for 60 minutes, followed by 15 minutes for Q&A, on Wednesday, March 23, 2022 at 1pm ET.

Will the pandemic ever end? And what are the long-term effects (if any) for someone living with celiac disease or another autoimmune disorder? What COVID-19 treatments are safe for people with celiac disease and are all masks safe for people with gluten-related disorders? Join two expert authors and clinicians with decades of experience for answers to new questions about COVID-19, celiac disease and autoimmunity: Alessio Fasano, MD, Director of the Center for Celiac Research and Treatment at Massachusetts General Hospital in Boston, Massachusetts; and Dr. Steven Plogsted, BS, PharmD, BCNSP, CNSC, FASPEN, Clinical Pharmacy Specialist (retired) at Nationwide Children’s Hospital in Columbus, Ohio.

Lee Graham, executive director of the NCA, will introduce the webinar, and Alan Leichtner, MD, Director of Celiac Disease Program at Boston Children’s Hospital, will moderate the session. A Q&A session will follow the presentations; please submit general questions below or during the webinar on the Zoom platform.

Continuing Education Units (CEUs): 1.25 CEU for Registered Dietitians (pending). CEU certificates will be emailed to participants who attend the live webinar event after completion of webinar and approval by the Commission on DieteticTime

Mar 23, 2022 01:00 PM in Eastern Time (US and Canada)

Register Here

THE GIANT PUFFBALL – A GLUTEN FREE MYSTERY

  It was a bit startling in mid September when my son came to pick up my grandson and asked what the big white beach ball was that was growing in our yard.  He said that it had gotten bigger each day since he had noticed it several days ago.  Curious, we went to examine the growth.  It was about the size of a soccer ball, almost perfectly round, white, and growing out of the gravel near our driveway.  It had a dense sound when tapped and it seemed solid.

     It was time to investigate.  My first thoughts were that it had to be some sort of fungus since we had recently had a few days of rain.  Researching it on the internet, there was surprisingly a lot of information. There were even some YouTube videos describing it, giving the history and scientific name, and also recipes.  Yes, it was an edible mushroom.  By this time, the family had come up with all sorts of guesses as to the identity.  Some of the strangest ideas were; an alien pod, a huge white marble, a scorpion larval sac, a tyrannosaurus egg, and a downed white helium balloon.

     The scientific name for the white beach ball invader was actually calvatia gigantea and commonly known as the giant puffball mushroom.  It was easy to spot and identify because of its large size and pure whiteness.  This fungus grows in late summer and early autumn in woods, forests, fields, and surprisingly in back yards.  The only competition it had for look-alike quality was the amanita mushroom which was a much smaller version of the white puffball when it first appears.  As it grows, the amanita takes a traditional mushroom shape and is also poisonous.  The calvatia gigantea is easily distinguished from the amanita when it is cut open.  The puffball mushroom is pure white and has the look of a marshmallow inside while the amanita looks like a typical mushroom is growing on the inside of it.  By the time the giant puffball grows to maturity, its size alone separates it from the amanita.

     Taking instruction from the many videos I watched, I picked the puffball, washed the outer skin, peeled it, chopped up a handful, sautéed in butter, and ate.  The taste was mushroomy and woodsy. The mouth feel was like tofu. The family was too grossed out to eat any and carefully monitored me during the next day in case I fell down clutching my stomach in agony.  The stem on the puffball was very short, barely an inch.  It was suggested to peel the thin skin, which comes off easily, because although edible, may cause stomach distress.  I cut and froze the rest of the mushroom and vowed to make it for Thanksgiving as a side dish.  A week later several more puffballs appeared in my neighbor’s yard.  I picked, prepared, and froze a couple of them and left the rest to the hungry lawn mower.  It should be mentioned that if there is any discoloration of yellow or brown on the inside of the mushroom, it has begun turning to spore and is not edible.  Also, consult a mycologist about giant puffball identification.

     But, why were puffballs showing up on our lawns now after many years?   Turns out that several weeks prior, my neighbor hired an organic lawn company to fertilize her yard.  The spores were most likely in the organic material.

     So, the mystery of the giant puffball was solved, and it was gluten free eating.  What still remains a mystery, however, is; why are there “scorpions” living in Ohio!!