Town Hall: Therapies Beyond the Gluten-Free Diet

From the Beyond Celiac website:

Join Beyond Celiac for a discussion with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center. This town hall will center around potential non-dietary therapeutic strategies for celiac disease. Potential treatment strategies currently in clinical trials will be covered along with the role of the gluten challenge and clinical trial designs.

Monday, Sep 26 at 12 pm PT / 3 pm ET.

Register here.

Webinar: Advancing Celiac Research Through Patient Participation and Industry Partnership

Wednesday, September 14, 2022, from 1- 2:15 pm ET

Register

From their website:

Join the Harvard Medical School Celiac Research Program and the National Celiac Association for the first webinar in our Fall 2022 “Ask the Experts” series. Speakers will present on selected topics for 60 minutes, followed by 15 minutes for Q&A, on Wednesday, September 14, 2022, from 1- 2:15 pm ET.

Patients, clinicians, scientists and industry partners all contribute to the research effort to find treatment alternatives to the gluten-free diet. Speakers will present the latest research and talk about the importance of patient participation in clinical trials. Daniel Leffler, MD, MS, AGAF, gastroenterologist at Beth Israel Deaconess Medical Center and senior medical director at Takeda Pharmaceuticals, will join Francisco Leon, MD, PhD, chief scientific officer and co-founder of Provention Bio, to present a research update on emerging technologies to diagnose and monitor celiac disease and alternative treatments in their experimental stages. Jocelyn Silvester, MD, PhD, pediatric gastroenterologist at Boston Children’s Hospital, will talk about the use of gluten in clinical trials.

Lee Graham, executive director of the National Celiac Association, will introduce the webinar, which will be moderated by Alessio Fasano, MD, pediatric gastroenterologist and director of the Center for Celiac Research and Treatment at Mass General for Children. A Q&A session will follow the presentations; please submit general questions below or during the webinar on the Zoom platform.

Continuing Education Units (CEUs): This course (220323-RSS) is approved by the Boston Children’s Hospital’s Continuing Education Department for 1.25 AMA PRA Category 1 Credits ™ for physicians, 1.25 contact hours for nurses, 1.25 ACE CE continuing education credits for social workers, and 1.25 CEUs for Registered Dietitians. Instructions for claiming credits will be made available during the webinar.

Register

Celiac Connect: Management of celiac disease after the diagnosis

On August 19, 2022, 10:00 am Celiac Disease Center at Columbia University is presenting an online program.

Registration

From their website:

The target audience is adult and pediatric physicians and physician’s assistants, nurse practitioners, fellows, dietitians and nutritionists, researchers and patients.

This is the third in a series of 10 bi-monthly programs.

AGENDA

10:00 AM – 10:30 AM Dietary management and the importance of follow-up

10:30 AM – 11:00 AM Follow-up of celiac disease after the diagnosis

11:00 AM – 11:30 AM Follow-up of celiac disease: why and how?

11:30 AM – 12:00 PM Case Presentation/Q&A

Registration

UChicago Celiac Center Family Network- Gearing up for School: Events and Friends

Register here.

Description from their email:

Join us on Tuesday, August 23rd at 6:30 PM CT for our virtual UChicago Celiac Center Family Network. We will be discussing the start of the new school year and gearing up for events and situations with friends.

Register in Advance

After registering, you will receive a confirmation email containing information about joining the meeting. Hope to see you there!

University of Chicago Medicine Celiac Disease Center (cureceliacdisease.org)

A TWO TANK TRIP TO THE EASTERN PANHANDLE OF WEST VIRGINIA

On a recent trip to see my sister in the southern part of Virginia, I stopped at a Bed and Breakfast in Charles Town, West Virginia for some sight-seeing and two days of relaxation. It was about a five hour trip from the Cleveland area. Although about 90 minutes from the Washington D.C. area, the pace of the Eastern Panhandle is relaxed, historic, and uncrowded. It’s hard to believe, but there are many commuters who live in the area and work in Washington.

Charles Town itself is a small community with many historic homes and buildings. Founded by the younger brother of George Washington, it changed hands from Union to Confederate many times during the civil war. Most historic buildings are civil war and late 1800s era. Most are privately owned, but a walking tour of the area pointing out historic properties is available. I ate at two restaurants, Alfredo’s Mediterranean and La Mezzaluna Italian. Both offered gluten free options and La Mezzaluna even had gf dessert. I stayed at the Carriage House Bed and Breakfast, 417 E. Washington St. Which was used as a headquarters for both Union and Confederate generals during the civil war. Yvonne did a great job of providing a filling and delicious gluten free breakfast on both days I stayed. It was relaxing, comfortable, and quiet. I highly recommend. Other Charles Town activities include a small museum, a Saturday Farmer’s Market (gluten free bakery available), Casino gaming, two golf courses, and Thoroughbred Racing.

Also, I visited Harper’s Ferry which is about 20 minutes from Charles Town. Historic buildings and activities abound, most run by the National Park Service. There are numerous history tours and even a nightly ghost tour, which became very spooky when the town closed down. Harper’s Ferry is at the confluence of two rivers and many river sports are available. One warning, parking is very limited and Harper’s Ferry is built into a mountain, so there is a lot of uphill and downhill walking.

Topping off the visit was a trip to Martinsburg and it’s mall with many chain restaurants. It was about 20 minutes away from Charles Town. There are a few antique shops left in the area, but, many have closed due to covid. However, prices are below the Cleveland area and there are some good bargains. I found great deals at the Two Crows Antique Mall, 1212 Mildred St. in Ranson.

Slower paced and leisurely, the Eastern Panhandle of West Virginia has many historic, comfortable, and gluten free affordable options.