Register here.
Description from their email:
Join us on Tuesday, August 23rd at 6:30 PM CT for our virtual UChicago Celiac Center Family Network. We will be discussing the start of the new school year and gearing up for events and situations with friends.
Register in Advance
After registering, you will receive a confirmation email containing information about joining the meeting. Hope to see you there!
University of Chicago Medicine Celiac Disease Center (cureceliacdisease.org)
Beyond Celiac is hosting this program July 28, 2022 – 3 PM ET. Register at their website.
From their website:
This Q&A session will feature renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.
Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.
Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.
In this Q&A, Dr. Guandalini will focus on answering questions about conditions and co-morbidities that are commonly seen alongside celiac disease. You can submit your questions when you sign up for the event—please do not send test results or ask Dr. Guandalini to diagnose you with any condition.
According to this New York Times article published 6/1/22, the Celiac Disease Foundation says that there are currently 24 potential therapies at various stages of development.
Of the potential therapies in development, the one furthest along — currently being tested in a Phase 3 trial — is a drug called larazotide, which decreases the porosity of the small intestine and has shown promise from earlier trials. In a best-case scenario, larazotide could be approved and on the market within two to three years, said Dr. Fasano, who was involved with the development of the drug and has a financial interest in it.
I first heard Dr. Fasano speak nearly 15 years ago when he said that a drug to treat Celiac Disease would be available in 5 years. That was 10 years ago. Hope he is more accurate with his current prediction.
Best to check with your pharmacist to make sure that your medications are dispensed gluten free. I’ve had several advise me to research the drug myself before taking.
Calling the drug’s manufacturer may be helpful but many are hard to contact.
Here are a couple of resources :
Gluten and Medications (glutenfreedrugs.com)
DailyMed (nih.gov)
UChicago Celiac Center Family Network is presenting a webinar on Tuesday, May 17, 7:30-8:30 pm. The topic is serology and the importance of regular follow-up.
Register here.
