Author: Diane

Wednesday, September 14, 2022, from 1- 2:15 pm ET

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From their website:

Join the Harvard Medical School Celiac Research Program and the National Celiac Association for the first webinar in our Fall 2022 “Ask the Experts” series. Speakers will present on selected topics for 60 minutes, followed by 15 minutes for Q&A, on Wednesday, September 14, 2022, from 1- 2:15 pm ET.

Patients, clinicians, scientists and industry partners all contribute to the research effort to find treatment alternatives to the gluten-free diet. Speakers will present the latest research and talk about the importance of patient participation in clinical trials. Daniel Leffler, MD, MS, AGAF, gastroenterologist at Beth Israel Deaconess Medical Center and senior medical director at Takeda Pharmaceuticals, will join Francisco Leon, MD, PhD, chief scientific officer and co-founder of Provention Bio, to present a research update on emerging technologies to diagnose and monitor celiac disease and alternative treatments in their experimental stages. Jocelyn Silvester, MD, PhD, pediatric gastroenterologist at Boston Children’s Hospital, will talk about the use of gluten in clinical trials.

Lee Graham, executive director of the National Celiac Association, will introduce the webinar, which will be moderated by Alessio Fasano, MD, pediatric gastroenterologist and director of the Center for Celiac Research and Treatment at Mass General for Children. A Q&A session will follow the presentations; please submit general questions below or during the webinar on the Zoom platform.

Continuing Education Units (CEUs): This course (220323-RSS) is approved by the Boston Children’s Hospital’s Continuing Education Department for 1.25 AMA PRA Category 1 Credits ™ for physicians, 1.25 contact hours for nurses, 1.25 ACE CE continuing education credits for social workers, and 1.25 CEUs for Registered Dietitians. Instructions for claiming credits will be made available during the webinar.

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On August 19, 2022, 10:00 am Celiac Disease Center at Columbia University is presenting an online program.

Registration

From their website:

The target audience is adult and pediatric physicians and physician’s assistants, nurse practitioners, fellows, dietitians and nutritionists, researchers and patients.

This is the third in a series of 10 bi-monthly programs.

AGENDA

10:00 AM – 10:30 AM Dietary management and the importance of follow-up

10:30 AM – 11:00 AM Follow-up of celiac disease after the diagnosis

11:00 AM – 11:30 AM Follow-up of celiac disease: why and how?

11:30 AM – 12:00 PM Case Presentation/Q&A

Registration

Register here.

Description from their email:

Join us on Tuesday, August 23rd at 6:30 PM CT for our virtual UChicago Celiac Center Family Network. We will be discussing the start of the new school year and gearing up for events and situations with friends.

Register in Advance

After registering, you will receive a confirmation email containing information about joining the meeting. Hope to see you there!

University of Chicago Medicine Celiac Disease Center (cureceliacdisease.org)

Beyond Celiac is hosting this program July 28, 2022 – 3 PM ET. Register at their website.

From their website:

This Q&A session will feature renowned celiac disease expert Dr. Guandalini, professor emeritus at the University of Chicago and the founder of the University of Chicago Celiac Disease Center. Dr. Guandalini’s clinical and research efforts have greatly influenced the way celiac disease is diagnosed and treated today. His work contributed to the revision of 20-year-old guidelines for diagnosing celiac disease.

Dr. Guandalini has been ranked among America’s “Best Doctors” since 2008. In 2012, he received the prestigious title of “Master of Pediatrics” from the Italian Society of Pediatrics. In 2016, he published Textbook of Pediatric Gastroenterology, Hepatology and Nutrition.

Dr. Guandalini is also the medical advisor for Beyond Celiac partner, and sponsor of this Town Hall, imaware™.

In this Q&A, Dr. Guandalini will focus on answering questions about conditions and co-morbidities that are commonly seen alongside celiac disease. You can submit your questions when you sign up for the event—please do not send test results or ask Dr. Guandalini to diagnose you with any condition.

Register at the Beyond Celiac website.

According to this New York Times article published 6/1/22, the Celiac Disease Foundation says that there are currently 24 potential therapies at various stages of development.

Of the potential therapies in development, the one furthest along — currently being tested in a Phase 3 trial — is a drug called larazotide, which decreases the porosity of the small intestine and has shown promise from earlier trials. In a best-case scenario, larazotide could be approved and on the market within two to three years, said Dr. Fasano, who was involved with the development of the drug and has a financial interest in it.

I first heard Dr. Fasano speak nearly 15 years ago when he said that a drug to treat Celiac Disease would be available in 5 years. That was 10 years ago. Hope he is more accurate with his current prediction.